Breathing Together: A Support Program for Children with Cystic Fibrosis

Currently, approximately 700 individuals in Israel are diagnosed with cystic fibrosis, of which about 40% (around 280) are children and adolescents. The length and quality of their lives depend greatly on the quality of care they receive. The complex challenges faced by children with cystic fibrosis represent daily and health-related hurdles on their path to leading full and meaningful lives. Early and comprehensive treatment during childhood has a critical impact on the future of cystic fibrosis patients. Timely intervention and ongoing care significantly improve both life expectancy and quality of life. However, the treatment burden associated with the disease brings many challenges. Many children struggle to keep up with schoolwork due to frequent hospitalizations and medical treatments, resulting in a significant educational gap. The lack of understanding of the curriculum leads to poor academic performance, and at the same time, children face the physical challenges of the disease. As a result, they experience a decline in self-confidence and social status, and the emotional impact affects their physical health as well. The development of tools to manage the disease from an early age is an integral part of the program. Early support allows children to develop the discipline and understanding needed to cope with treatments and daily challenges, helping them maintain a healthy and stable routine. Through this support, children also learn to address emotional challenges that arise from their health condition. The program provides children with essential support in several key areas: • Educational Support: Children with cystic fibrosis often miss school due to hospitalizations, medical treatments, and recurrent admissions. Their absence makes it difficult to stay on top of the academic material. The program helps fund private lessons, tutors, or additional study sessions to bridge educational gaps and keep children connected to their studies. • Emotional Support: Children facing cystic fibrosis deal with not only physical but also emotional struggles. The constant battle with the disease and its impact on their lifestyle can create significant emotional burdens. The program offers individual psychological support to both children and their families, strengthening their emotional resilience and helping them cope with the fears and challenges generated by their health condition. • Specialized Nutrition and Supplements: Due to absorption issues, children with cystic fibrosis require enriched food and special nutritional supplements to maintain a healthy weight and ensure overall health. The program supports funding for these specialized foods, helping to maintain their health over time. • Physical Activity Accessibility: Physical activity plays a crucial role in maintaining the physical and mental health of children with cystic fibrosis. Such activities help improve endurance, strengthen breathing muscles, and enhance overall quality of life. The program provides scholarships for gyms and other sports activities, helping children maintain a healthy and balanced routine. Your support will allow us to continue and expand these essential activities, giving children the tools they need to live fulfilling and meaningful lives despite the challenges posed by the disease.