PSP awareness and Registry in memory of Prof Nir Giladi

Diagnosis with PSP is a frightening thing. It is a truly horrible atypical variant of Parkinson’s. In Israel there was no support infrastructure on diagnosis and no information either for patients, care givers or non neurology medical professionals. It is the wild west. Even sadder in our Start Up Nation, there are no clinical trials driving towards easing/solving the situation. It impacts few people but my family and I are one of them and we need hope and help - not to be written off as ’too small a community’. In memory of my late Neurologist Professor Nir Giladi, who first spotted signs of PSP in me, and who healed and helped thousands I am launching this awareness and fundraising campaign together with his hospital TLVMC to start a registry for clinical trials and provide much needed patient information. TLVMC under Prof Alcalay will manage the fund with my strong input regarding the patient experience element. I ask you to please give generously to support me and niche but important cause.