איגוד סיסטיק פיברוזיס בישראל (סי. אף.) (.CYSTIC FIBROSIS FOUNDATION OF ISRAEL (C
Cystic Fibrosis: One Disease, A Whole World
Cystic Fibrosis (CF) is a severe, multi-system genetic disease that affects the lungs, digestive system, pancreas, liver, and more. Patients with CF face an intensive daily routine of up to five inhalations, chest physiotherapy, dozens of pills, special nutrition, frequent medical checkups, and hospitalizations.
The Cystic Fibrosis Foundation of Israel - CFFI (est. 1967, Reg. No. 580030096) works to improve the quality of life of patients and support their families, especially those from disadvantaged backgrounds or with more than one child affected by CF.
CFFI focuses on three main areas:
Direct support for patients and families
Assistance with physiotherapy, medical equipment and medications not covered by the national health system, enriched nutrition, psychological treatment, private tutoring, guidance through health and welfare systems, and support in lung transplant processes.
Advancing medical innovation
Managing clinical trials, promoting personalized medicine, supporting the inclusion of new drugs in the national health basket, improving genetic screening, and enabling early diagnosis.
Awareness and advocacy
Conferences, lectures, publications, and professional information for patients, families, and healthcare providers.